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Friday, September 24, 2010

Well it has been two days since Ammy's last surgery. On Tuesday she had a port put in so that when chemo starts it will be much easier with less stress on her body. She is recovering well and we are still waiting to hear about when we will start her chemo. Thank you all for your continued prayers and support. Please continue to pray for me as I continue to learn what foods ammy needs to stay away from.

Sunday, September 19, 2010

Well another week has come and gone and not much to report which i have learned is a very good thing!! Ammy is spending the afternoon at her Tutu's (dad's stepmom). They are baking cookies together, which is one of their favorite activities. Tutu and Ammy have a special relationship unlike any i have seen. She has embraced Ammy and all of us and is a special part of the family! So while tutu and ammy are baking i am enjoying a few hours of serenity and peace before the craziness of the next few months begin. There is not one day for the next week that i do not have something coming up. Ammy has her port put in on Tuesday, and chemo will be following soon after. I am beginning my senior year of school next Monday and my wedding is only a short 2 months away! I should be spending time figuring this all out but instead i am enjoying the sunshine and a good cup of starbucks!

Monday, September 13, 2010

Update on Ammy

For those of you who follow my sisters blog this will be old news to you...I am sorry it has taken me so long to update on what is going on with my little girl. It seemed at the time that there was more questions than answers so as a family we decided to delay giving an update until we knew what was going on. As for the surgery Ammy is healing well. She just started her second week of school today and is generally in a great mood, free of pain. Dr. G was able to remove most of her tumor. Unfortunately I cannot say all is gone. In order to remove the entire tumor the doctor would have had to take out too much healthy tissue, and leave her paralyzed. He felt that under the circumstances it was best to take as much as he could and still leave her healthy and able to do what she is doing now.

As for the next stage in all of this!! I met with her onchologist and they have decided that chemotherapy is what needs to come next. Our hope for this treatment is that it will stop the growth of tumors for the next few years. The chances of the chemo getting rid of the tumor is very small and is not something we are hoping for. Ammy will be taking care of this most likely for the rest of her life. She will be going for surgery soon and having a port put in so that they can deliver the chemo easily and do blood tests with less pain and hassle. She will be taking 3 of the chemo meds by mouth and we will go in about every two weeks in order to get an iv of her other meds. This will be a big change for our family with having to be on a strict diet and a tight schedule. We have always tended to be more spontaneous and just dealt with things as they come along. I will need to be much more organized and plan ahead better than I have before, but like everything else we will learn and just take it one day at a time!

Tuesday, September 7, 2010

Today I sent my baby girl for her first day of second grade. This was very hard as she just finished having surgery two and a half weeks ago and we are in a new school district. I am missing her a bunch but enjoying the morning sipping coffee with Steve and taking a minute to update the blog for the first time in what feels like months!!

As for an update on the medical situation, we still don't know much of anything!! Dr. G is supposed to be getting back to me in the next few days to let me know what the plan may entail!

Hope you all enjoy a great back to school!!